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Fibrodysplasia ossificans progressiva (FOP) is a disabling connective-tissue genetic disease characterized by congenital malformations of the great toes and progressive heterotopic endochondral ossification (HEO) and is the most catastrophic of HEO disorders in humans. Often misdiagnosed as cancer or fibrosis, this disease makes muscle tissue and ligaments harden and form into bone tissue that develops outside the normal skeleton. Normally noticed during early childhood, FOP generally begins with features associated to the neck and shoulders, gradually working its way down the body and the limbs.
Join us as we discuss the consequences of a delayed diagnosis with strategies for a proper evaluation to avoid misdiagnosis. Identification of episodic event triggers, management strategies, and discussion of current studies including an update on the first oral treatment available will be addressed.
Schedule |
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| * Times are PST | |
| 12:45 PM | Registration and Boxed Lunches |
| 12:55 PM | Welcome, Disclosures, Supporter Acknowledgement |
| 01:00 PM | Work-up Procedures for Diagnostic Evaluation |
| 01:20 PM | Episodic Flare-ups and HO plus Supportive Care Management |
| 01:30 PM | Clinical Trial Data of Several New and Emerging Treatments in Develoopment |
| 01:45 PM | Closing Comments, Audience Q&A |
| 02:00 PM | Adjourn |
Kelly Wentworth, MD
Assistant Professor
Metabolic Bone Clinic
University of California San Francisco
San Francisco, CA
Mona Al-Mukaddam, MD, MS
Associate Professor of Clinical Medicine and Orthopaedic Surgery
Director of the Penn Bone Center
Ian Cali Clinical Scholar at the Center for Research in FOP & Related Disorders
Penn Medicine University City
Philadelphia, PA
Robert J. Pignolo, MD, PhD
Robert and Arlene Kogod Professor of Geriatric Medicine
Mayo Clinic College of Medicine
Rochester, MN
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